O cuidador e a tecnologia na conformação do idoso portador de Alzheimer
Palavras-chave:
Doença de Alzheimer, . Tecnologia assistiva, Estudos CTS
Resumo
Este texto levanta as dimensões de análise que surgem ao pesquisar a materialidade da idade e do envelhecimento com a doença de Alzheimer (DA) por meio da tecnologia. Cuidadores informais ou familiares que assistem aos idosos portadores dessa demência que envelhecem em suas casas moldam as tecnologias a partir de uma percepção histórica e socialmente construída da DA e do idoso. Implicações sociotécnicas e sociopolíticas para esses idosos são discutidas.
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Referências
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KARLAWISH, J.H.T.; CASARETT, D.; PROPERT, K.J.; JAMES, B.D.; CLARK, C.M. Relationship between Alzheimer’s disease severity and patient participation in decisions about their medical care. Journal of Geriatric Psychiatry and Neurology, v. 15, n. 2, 2002. p. 68-72.
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MARSHALL, T.H. Citizenship and social class. In T. Marshal e T. Bottomore (Eds.). Citizenship and social class. London: Cambridge University Press, 1950. p. 1-85.
OUDSHOORN, N.; PINCH, T. Introduction: how users and non-users matter. In N. Oudshoorn and T. Pinch (Eds.). How users matter: the co-construction of users and technology. Cambridge, MA: The MIT Press, 2003. p. 1-25.
PEINE, A., FAULKNER, A., JAEGER, B., MOORS, E. Science, technology and the “grand challenge” of ageing - understanding the socio-material constitution of later life. Technological Forecasting & Social Change, n. 93, 2015. p. 1-9.
PINCH, T. Giving birth to new users: how the Minimoog was sold to rock and roll. In N. Oudshoorn and T. Pinch (Eds.). How users matter: the co-construction of users and technology. Cambridge, MA: The MIT Press, 2003. p. 247-270.
ROBINSON, L.; HUTCHINGS, D.; CORNER, L.; FINCH, T.; HUGHES, J.; BRITTAIN, K.; BOND, J. Balancing rights and risks: conflicting perspectives in the management of wandering in dementia. Health Risk and Society, v. 94, n. 4, 2007. p. 389-406.
SCHOT, J.W.; DE LA BRUHEZE, A.A.A. The mediated design of products, consumption and consumers in the twentieth century. In N.E.J. Oudshoorn e T. Pinch (Eds.). How users matter: the co-construction of users and technology. Cambridge, MA: The MIT Press, 2003. p. 229-245.
TOPO, P. Technology studies to meet the needs of people with dementia and their caregivers: a literature review. Journal of Applied Gerontology, v. 28, n. 1, p. 5-37, Nov. 2009.
WHITLATCH, C.J.; FEINBERG, L.F.; TUCKE, S.S. Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. In The Gerontologist, v. 45, n. 3, 2005. p. 370-380.
WINNER, L. Do artifacts have politics? Tradução: Fernando Manso. In Daedalus, v. 109, n. 1, Modern technology: problem or opportunity? Cambridge, MA: The MIT Press (Winter, 1980), 1980. p. 121-136.
WOOLGAR, S. Configuring the user: the case of usability trials. In Law, J. (Ed.). A sociology of monsters. Essays on Power Technology and Domination. London, UK: Routledge, 1991. p. 58-99.
BALLINGER, C.; PAYNE, S. The construction of the risk of falling among and by older people. Ageing and Society, v. 22, n. 3, 2002. p. 305-324.
BARNES, R.; AUBURN, T.; LEA, S. Citizenship in practice. British Journal of Social Psychology, v. 43, 2004. p. 187-206.
BARTLETT, R.; O’CONNOR, D. From personhood to citizenship: broadening the lens for dementia practice and research. Journal of Aging Studies, v. 21, n. 2, 2007. p. 107-118.
BOUMA, H.; FOZARD, J.L.; BOUWHUIS, D.G.; TAIPALE, V. Gerontechnology in perspective. Gerontechnology, v. 6, n. 4, 2007. p. 190-216.
BRITTAIN, K.; CORNER, L.; ROBINSON, L.; BOND, J. Ageing in place and technologies of place: the lived experience of people with dementia in changing social, physical and technological environments. Sociology of Health and Illness, v. 3, n.2, 2010. p. 272-287.
FEINBERG, L.F.; WHITLATCH, C.J. Are persons with cognitive impairment able to state consistent choices? In The Gerontologist, v. 41, n. 3, 2001. p. 374–382.
FOX, N. Postmodern perspectives on care: the vigil and the gift. Critical Social Policy, v. 15, 1995. p.107-125.
JOYCE, K.; MAMO, L. Greying the cyborg. New directions in feminist analyses of aging, science and technology. In Age matters: realigning feminist thinking. New York, London: Taylor & Francis, 2006. p. 99-121.
JOYCE, K.; WILLIAMSON, J.; MAMO, L. 2007. Technology, science, and ageism: an examination of three patterns of discrimination. Indian Journal of Gerontology, v. 21, n. 2, 2007. p. 110-127.
JOYCE, K.; PEINE, A.; NEVEN, L.; KOHLBACHER, F. Aging: the socio-material constitution of later life. In U. Felt, R. Fouché, C.A. Miller, & L. Smith-Doerr (Eds.), The Handbook of Science and Technology Studies (4th ed., p. 915-942). Cambridge, MA: The MIT Press, 2017.
KARLAWISH, J.H.T.; CASARETT, D.; PROPERT, K.J.; JAMES, B.D.; CLARK, C.M. Relationship between Alzheimer’s disease severity and patient participation in decisions about their medical care. Journal of Geriatric Psychiatry and Neurology, v. 15, n. 2, 2002. p. 68-72.
MARRES, N. Why political ontology must be experimentalized: on eco-show homes as devices of participation. Social Studies of Science, v. 43, n. 3, 2013. p. 417-443.
MARSHALL, T.H. Citizenship and social class. In T. Marshal e T. Bottomore (Eds.). Citizenship and social class. London: Cambridge University Press, 1950. p. 1-85.
OUDSHOORN, N.; PINCH, T. Introduction: how users and non-users matter. In N. Oudshoorn and T. Pinch (Eds.). How users matter: the co-construction of users and technology. Cambridge, MA: The MIT Press, 2003. p. 1-25.
PEINE, A., FAULKNER, A., JAEGER, B., MOORS, E. Science, technology and the “grand challenge” of ageing - understanding the socio-material constitution of later life. Technological Forecasting & Social Change, n. 93, 2015. p. 1-9.
PINCH, T. Giving birth to new users: how the Minimoog was sold to rock and roll. In N. Oudshoorn and T. Pinch (Eds.). How users matter: the co-construction of users and technology. Cambridge, MA: The MIT Press, 2003. p. 247-270.
ROBINSON, L.; HUTCHINGS, D.; CORNER, L.; FINCH, T.; HUGHES, J.; BRITTAIN, K.; BOND, J. Balancing rights and risks: conflicting perspectives in the management of wandering in dementia. Health Risk and Society, v. 94, n. 4, 2007. p. 389-406.
SCHOT, J.W.; DE LA BRUHEZE, A.A.A. The mediated design of products, consumption and consumers in the twentieth century. In N.E.J. Oudshoorn e T. Pinch (Eds.). How users matter: the co-construction of users and technology. Cambridge, MA: The MIT Press, 2003. p. 229-245.
TOPO, P. Technology studies to meet the needs of people with dementia and their caregivers: a literature review. Journal of Applied Gerontology, v. 28, n. 1, p. 5-37, Nov. 2009.
WHITLATCH, C.J.; FEINBERG, L.F.; TUCKE, S.S. Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. In The Gerontologist, v. 45, n. 3, 2005. p. 370-380.
WINNER, L. Do artifacts have politics? Tradução: Fernando Manso. In Daedalus, v. 109, n. 1, Modern technology: problem or opportunity? Cambridge, MA: The MIT Press (Winter, 1980), 1980. p. 121-136.
WOOLGAR, S. Configuring the user: the case of usability trials. In Law, J. (Ed.). A sociology of monsters. Essays on Power Technology and Domination. London, UK: Routledge, 1991. p. 58-99.
Publicado
2019-12-10
Como Citar
Soeiro, M. C. de, Carvalho, M. F. de, Borges, J. A. dos S., & Dias, A. F. da S. (2019). O cuidador e a tecnologia na conformação do idoso portador de Alzheimer. Revista Scientiarum Historia, 1, 8. https://doi.org/10.51919/revista_sh.v1i0.76
Seção
Ciência, Tecnologia e Sociedade
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